Patients can move around healthcare systems and doctor networks at will, as long as their health insurance will allow it. This creates an exciting opportunity for the patient and a difficult one for the treating professionals who deal with their healthcare. Information is flowing from all places of treatment. None of it flows into the other seamlessly. When patient journey mapping includes a clinical trial, what happens to that information?
The massive amount of medical data a person accumulates in databases and cloud-based storage for healthcare information is astounding. Trouble is, not much of that is shared when the patient goes from one treating professional to the next. Everything reverts back to Page One of the patient’s narrative of which to build on. What about all that other information? It is forever locked behind a login and passcode of an EHR that isn’t designed to share.
If healthcare really wants patient journey mapping, then much has to change in general. What throws everything into a tailspin datawise is the introduction of a clinical trial into a participant’s patient journey mapping.
Clinical Trials Need To Be Seen As Healthcare in Patient Journey Mapping
What a patient has to go through in order to get to the stage of wanting to be involved in a clinical trial is a lot. There is a long road that is patient journey mapping to show a treating physician or a CRO where they have been and how they got here today. All that information is useful, or could be useful in avoiding adverse reactions or overlooking anything that might tell a CRO that a patient is not really a good fit for their trial after all.
Conversely, what goes on in a clinical trial tends to stay with the clinical trial, making it almost impossible for the treating physician to find out anything more about their patient’s data. Many times, doctors are dealing with the effects of treatment during a clinical trial that are not materializing until the clinical trial has ended, leaving the doctor to try and put the puzzle pieces back together again. This also another aspect of patient journey mapping that CROs would like to have when putting together data and information on long term effects with participants that could otherwise be lost in EHR systems that won’t notify them.
When clinical trials are seen as a separate entity from the patient’s overall treatment plan and left out of patient journey mapping, it creates holes in the patient’s healthcare story. These holes are the missing pieces of information that need to be included to make patient journey mapping whole. What good is a map with holes in it to someone who needs it to get where they need to be?
Clinical trials save lives and improve patient outcomes. Why are they not part of the patient’s healthcare story the way they should be?
EHR Systems Only Tell One Aspect Of The Patient’s Story
One thing EHR systems at any healthcare system or doctor network never includes is data from a clinical trial in patient journey mapping. This is a chasm that not only needs to be crossed but bridged as not having patient outcome data in a clinical trial could cause undo stress to the patient and the treating physicians now and in the future. What information would be useful to a treating physician if the patient experiences side effects or long term effects of a clinical trial they participated in? All of it!
All the information included in patient journey mapping eliminates guessing games and helps treating physicians ascertain what a patient needs. This useful information also creates an ability for doctors to be informed of benefits in a clinical trial
from another patient that may be of use to other patients suffering from the same illness.
EHR systems are designed to protect and lock down information and with good reason; HIPAA compliance is necessary. The siloed information and lack of data sharing does create barriers that need to be taken down for better patient outcomes and patient engagement. How do we effectively and securely meet this challenge without compromising HIPAA requirements?
eCare Vault Creates Bridges Patient Journey Mapping
The answer to the questions you have about how to share patient information across healthcare systems, doctor networks, and clinical trials is as easy as eCare Vault. It is the first solution of its kind to fill in the holes in patient journey mapping where it has never been done before. Finally, doctors can have insights into their patients’ participation in a clinical trial, and CROs can gain access to participant healthcare information and treating physicians. Patients can view and provide feedback on all aspects of patient journey mapping so everyone is fully informed and ready to work together for a better patient outcome.
If being an effective part of patient journey mapping for a full-spectrum approach to healthcare is important to your healthcare system or clinical trial, contact us today for a free consultation.