Patient-centricity is the new buzzword in the clinical trial space. In fact, that is pretty much the buzzword for the entire medical community at large. But is it happening? We know that everyone in these spaces wants the patient to feel as though they are at the center of the known medical treatment universe, but what does that look like.
In other words, what is the strategy to make that happen and how will both the patient and these communities know when they have arrived? Patient centricity takes more than hopes and dreams to be realized.
The clinical trial community needs a road map that helps them find their way to patient centricity. What they may not know is one such thing does exist. It is just that the ones currently holding the map are those in the web space.
That may sound like a ridiculous statement to those in clinical and medical spaces to think that the way to patient centricity is by asking web developers how to do it, but is it? What practices do web developers employ to make a website or application highly usable, or dare we say, user-centric? Let’s find out.
Patient Centricity Is What UX Is In A Clinical Trial Design
What is UX or User Experience? It is the design principle that says the best way to design anything is to ask the people you are designing it for and create it around their input. It is also the assumption that you can’t make assumptions about what your user wants or needs. You have to design it entirely around their feedback. Is the clinical trial community doing that?
Understanding how the patient would like to be treated in a clinical trial is a revolutionary way to look at a clinical trial. Normally, in either a medical treatment or clinical trial, we’re telling the patient how things are going to go. In a UX scenario, we’re asking the patient to tell us how it should go. In the UX community, it’s called a Usability Study.
There are a few ways to go about a usability study but the result is a whole lot of useful data that will tell you how to build a successful clinical trial, based on what the patients say one would look like.
Now, there are always going to be great suggestions that cannot be employed in anything someone is designing. What we are looking for in any usability study is a consensus of direction. If you want patient-centricity start with patient direction.
What do we do with all this data in a usability study? We apply it to the clinical trial process. It’s not enough to just go with post-trial surveys to try and make patient centricity work. A focused study of current clinical trial patients and post-trial patients is a great place to start recruiting usability study participants so you can start applying UX to your patient-centricity strategy.
Where Can You Start To Find User Experience Information Now?
Getting your clinical trials to start going in the direction of patient centricity can begin by either validation or expelling certain assumptions your CRO is making about the patients in the clinical trials you are running.
Aside from patient surveys, what else are you doing to gather information on how to make true patient centricity a reality?
Community building is part of the beginning process of patient centricity. Creating community environments for your patients to begin talking to one another creates a feeling of belonging and empowerment. This enables your patients to begin to open up about their thoughts, feelings, and experiences in your clinical trial.
It is this honest and open-ended feedback that CROs are so desperate to get ahold of. In the web community, this is called “listening.” Taking the time to collect common topics of discussion in your clinical trial communities will allow you to apply that information to the assumptions your CRO has about the trial participants and suss out if it is true.
Next, you can use an established community to begin recruiting for usability studies. You can also use the community-building platform to listen to the usability study participants for better information gathering in building your patient-centricity strategy. What would a usability study look like in your patient-centricity strategy?
What Can CROs Use For Their Usability Study Community?
The difference between most community-building platforms for usability studies and the ones a CRO would need to use is HIPAA compliance. CROs need to use a community-building platform that keeps in step with HIPAA regulations and secures patient information.
That such solution is eCare Vault. eCare Vault is the first HIPAA compliant, cloud-based solution of its kind to be used by the medical and clinical trial community and it ready to use for your next clinical trial today.
So, what does your patient-centricity strategy look like today? What could it look like with the right tools? For more information on how you can build a meaningful patient-centricity strategy before your next clinical trial, contact us today.