Visit this page often for weekly blog posts that we think you’ll find interesting and helpful.

Topics may range from “Connecting a care team to effectively implement an individualized education plan” to “Elder-specific issues in care coordination.” We think unlocking potential and enhancing care outcomes includes keeping everyone informed of new and better ways to organize and coordinate care in patient-centric ways…

Cancer Data In Clinical Trials Should Be Shared

If you read any trade magazines in the pharmaceutical industry, you will quickly find there are many clinical trials going on related to cancer. Biopharma is in an all-out war against cancer. With all the clinical research and clinical trials in play, cancer data in clinical trials is amassing by the second. This should be good news for everyone, that is if this data is being shared amongst the cancer research community.


To protect trade secrets and personal data from clinical trial participants, just like the traditional healthcare industry, EHRs and patient databases are locked down to prevent any breaches from taking place. It is in the effort of protecting patient information that may be preventing non-personal data from being shared with fellow researchers to advance cancer treatment in general.


What would it look like if all clinical trials seeing advancement in cancer treatments could freely share information that would help anyone who is looking to make strides in these areas as well?


Cancer Data In Clinical Trials Need Not Be A Secret To Others


Being first to market is what BioPharma companies are banking on. In fact, their stock prices weigh heavily on it. No one doubts the importance of free trade and the need to keep some things with regard to clinical research within the confines of the CROs and pharmaceutical companies they work for. Still, other data found and stored in any clinical trial could be of use to another clinical trial out there in the world who could benefit from it to advance their trial.


The most important data is the data that shows cancer data in clinical trials that failed to meet the objectives. Why did it fail? What is worth looking into for another type of cancer? Could a failed clinical trial in one way be a missing key to another clinical trial for something else? Why can’t this information be mined and shared if requested?


The greater good should be considered in any clinical trial situation to some degree, shouldn’t it? The trouble is the way we store HIPAA compliant data. Since none of the systems that any organization deals with patient data is open, how can this information be made available to anyone outside of the organization?


Cancer data in clinical trials would also be of great use to researchers at the university level, as well as oncologists looking for the next promising treatment for their patients. Without any ability to peer into the lens of clinical research, it is difficult to give clinical trials any validity outside the trial community.


Such information could breathe new life into finding cures and treatments for cancer. Without any insight, it’s hard to get excited about the future of cancer treatment for anyone. Wouldn’t this information be helpful in helping oncologists refer their patients for clinical trials that may benefit from them?



The Best Cancer Data In Clinical Trials Is Collaborated On


What would cancer research and clinical trials for cancer look like if more collaboration on cancer data in clinical trials was able to happen? The first thing to change in the BioPharma research community would be on how to store data that can be collaborated on. Deciding what to share is an important part of setting up perimeters for collaboration:


  • Screening qualifications
  • Acceptance criteria
  • Data on why participants elected to not participate
  • Side effects
  • Patient soft data
  • Success rates
  • Failure rates


What would you add to the list? All this information is non-personal and could easily be extracted from an individual’s patient data. Since EHR systems are closed, an EHR agnostic system would have to be the hub by which all this information can be shared and collaborated on.


What if the patients themselves could offer their own information, collaborate on their own clinical trial outcomes? Has such an endeavor ever happened in clinical research so far?


eCare Vault is the first solution of it’s kind to be created to do just that. eCare Vault is a patient collaboration platform CROs, CRAs, clinicians, research professionals, and even patients can come together toward a common goal; unlocking potential for everyone. Collaboration takes a collective effort and a unified front on a mutual problem.


The clinical research being done on the treatment of cancer is staggering. The potential to make new strides towards better treatments is more in reach than ever before. eCare Vault is the best solution for sharing cancer data in clinical trials. You can do more for your cancer research and clinical trials. Contact us today for a demonstration on how eCare Vault can get your research further than it ever has been before.




Thank you for sharing!